Sarah Watch

NOT a "bucketlist" item!

2011-05-20T21:17:00.000-07:00

Okay, I am NOT calling this a bucketlist item, because in some dark recess of my mind that means that I am working towards and planning on kicking the bucket...and that is faaaar away from any current plans. However, I am admittedly a list-maker, and it feels sooo great to check something off a list! So, my solution is to gleefully announce that my masters degree is almost in hand! I get the actual degree in August after my summer courses. (Check!)

Yahoo! Back to my papers and project...!

My husband, parents, and brother were able to celebrate with me in Cedar City as I walked and got "hooded". I also appreciate all the other friends and family members who couldn't be there, but sent along their love and support via text, phone, notes, and flowers! Ben and I both agreed that it would be much cooler if the hoods resembled the jedi master hoods...maybe Amy could get on that with the fashion industry!? Any takers?

Thank you to all who have been patient with my lack of time and energy as I tackled this. I am seriously amazed at how blessed and lucky we are to have such a great support system of family and friends.

As of May 13, I am 7 months chemo-free and still in remission. My oncologist graduated me as well, stretching my doctor appointments out to every few months instead of every month. :-) My calandar has no cancer clinic appointments until....JULY!!! Awesome!!!!
I know not everyone gets such a happy story to their fight with cancer. KC teases me that I've never really associated myself with cancer- "I have Leukemia- not Cancer." Yea, yea; I know- Leukemia is a type of cancer. On those days when it is hard to "Hoover it (aka Suck it up)" and be strong, it is an overwhelming blessing to be lifted up by those around you. I have found a plethora of heros not only these last 3 years, but in my lifetime. For all those quiet, loud, passionate, steadfast, diverse heroes out there who are enduring trials themselves or standing by their loved one: Celebrate the little things and never give up! What an amazing thing it is to watch people serve friends, family, and even strangers by donating time, resources, and sharing their love and compassion with people who need so much during such times. From someone who has received so much, I thank you. I am a better person for knowing you, and am inspired to be even more.

Year 3- Done!!!

2011-02-05T12:38:00.000-08:00

What a good day for an anniversary of life!

I just thought I'd write a few words today; life is so different than 3 years ago! My body was coming to a standstill as I had little blood to nourish it. Life was coming to a freezing halt as everything went on hold until better days. I feel so blessed to be shown amazing beauty in that stillness!

*Like grass coated with frost, I was insulated from harm in a protective environment of excellent care.

*Just as our breath is miraculously visible on a cold morning, I witnessed the hourly evidence of prayers spoken.

   *At first impression there was monotony, but then I realized the copious shades of service, layering me with a contrast of health to my impending illness.
   *The silent moments allowed me the luxury of looking within, strengthening my roots, and stretching my listening abilities beyond my sight.
   *Relying on stores of nurishment, I gained gratitude for all the preparations both spiritually and physically of myself and others.
   *The hush of winter reminds you there is a spring coming soon, full of life and awakenings!

The winter for me is melting away. I feel the warmth and energy slowly piercing the fog of my brain and slowed body. Thank you for your patience with me, and thank you for your loving support. I am truly humbled when I think of all the lesson plans others created on my behalf; the time spent in notes, phone calls, and visits; the amounts of faith and care that were extended to me and my family; the schedules and needs that were rearranged to ease my burdens; the moments of focused listening to my thoughts...I thank you. These are feeble words, but heartfelt. I hope I can someday be that robin for you on your wintry day, reminding you that the climate will change soon.

Green Light....GO!

2010-10-13T20:16:00.000-07:00

So many good tidings of great joy today! The last Chilean miner making it to the surface, a good friend's birthday, and lots of other happy things whose specifics have already slipped my memory... but, may I add to the celebrations?

I'M DONE WITH AAAAAAALLLLLLLLL MY CHEMO!!!!!

No more daily pills.

No more weekly IVs.

ALL DONE!

Happy, happy, joy, joy! I'm done, I'm done, I'm done!

What a glorious day! Thank you to all those near and far who celebrated with me today, and continue to celebrate each day after. I loved the many happy dances we got to share, along with the other forms of jubilee! My students even applauded each time I entered the room to celebrate the exciting day; their joy was sooo appreciated!

The official diagnosis is still remission, but I now have monthly visits to the doctor for a blood draw to validate the Leukemia is not back, and then after two years....I am declared CURED! What am I going to do with my Wednesdays now? lol.

I've learned that during our challenges in life there are moments when the road gets smoother for a while, and other times when the road forks to a whole new and different adventure; both allowing us the chance to sit down and count our many blessings, thanking God and those who sustain us in our everyday travels. So, today as I metaphorically take one exit for another onramp, I THANK YOU!
I have felt copious amounts of support and goodwill in my life; these last few years especially. I am still amazed at the caring and competent care I have received from "my" doctors and nurses and whatever other titles they all hold. My schoolmates have eased the peripheral burdens of teaching while going through my treatments, and have always inspired me in their spontaneous acts of service. My close friends and neighbors amaze me with their awareness of others, and have taught me how to truly sustain a soul over the long haul. My family....how can you sum up the heroic moments from family? They are everything. And, not to get too sappy, but KC has been my rock. He takes care of the world so I can hold some resemblance of "keeping it together", even when my fatigued brain and body collaborate with my stubborness. Yea, he's cool. I'm very happy for this path God has put me on; the scenery is beautiful!

So, as I have been sitting at this intersection for a little while now, the light has finally changed! I'm excited to see what lies down the road, and I'm ready to put the pedal to the metal. See ya at the next intersection. Green light.....Go!

Year 2- Done!!!

2010-02-07T01:12:00.000-08:00

I've now finished my 2nd year of treatment for leukemia... and I'm pretty proud! We're hoping for just another 9 months, and then I'll really get in some recovery time. I miss my brain. I miss my energy. I hope I find them again... then again, maybe their reality is a figment of my imagination. Maybe I'll find their glory never really was there, and all my excuses are gone! Hummm... I'll have to think about that!

The good thing about anniversaries and all other celebrations is that you stop and take time to share gratitude and joy for all you have, and the people who enrich your life sooo much. For all the many people who have taken time out of their lives to bring/send/or pray for my comfort and joy; I send to you a heartfelt thanks. I continually find myself admiring all the heroes around me who do so much, so humbly. Thank you. I'm trying to be like YOU as I grow up! For the many people who have dedicated themselves to their profession with much integrity and joy: Thank you for easing my mind and body into capable hands. You make the journey hopeful and are a support system larger than one person. For all the people who push for, fund, and participate in research which brings cures to people's lives....Thank you. You give people their futures; an amazing gift! And last, but most important, I give Thanks to God. It is He who lightens the load, gives strength when I feel "tapped", gives us the priesthood to bless our lives, inspires us through scripture, songs and service, and gives me all the reasons to live the way I do. He makes all the previous "thanks" possible! And, it is truly His eternal future for which I aspire!

Just for fun...pictures highlighting my hair the last two years. Vain, I know...! But it seems to be one of the most popular topics with people, so here it is...

P.S. Christmas and New Years was wonderful with so many family members around! I'll post that later.

2009-12-09T16:47:00.000-08:00

Yingle, Yingle!!!

For all those Edward lovers out there....! This is from someone on the staff at hisgoldeneyes.com; a website that is literally my daily happy pill! I know. Pathetic. Still love it, though!
(To turn off the celebratory music so you can watch the "show", go to the "part Dos" entry, the first slide set, and hit the sound button. Whala...silence!)

My leukemia news has been pretty boring the last few months; just doing my protocol and same old stuff week to week. But, I FINALLY have some fun news to report! I've been "graduated".... in a sense. What it means? Separate from my weekly chemo treatments, my monthly visit has "graduated" to seeing the P.A., freeing up my amazing oncologist to see sicker people. P.S. The sicker people group no longer includes me. Pretty great, right?! Right. Dr. Bott had quite the twinkle in his eye as we talked over the good news.
Then, to top it off, my platelets are joining the party of my bloodstream. They were slow to come back, but I haven't been in the "low" category for two weeks now. Awesome. So, feel free to do a happy dance with me. Then shake it all around....

My Christmas wish for you is that you enjoy the holiday and savor each:
carol and song of the season
ornamented tree
pine bough, bundle of cinnamon, and scented pinecone
decoration that brings joyous memories
falling flake that gives hope for a White Christmas
lit up house on your street
cheesy TV special
book that makes you cry (am not...)
card from loved ones far and near
snacks that go sooo against every diet invented
present you wish for others, whether it is bought or not
moment in which you testify of the miracle of Jesus

Merry Christmas! Love to all, and Peace on Earth.

2009-11-15T17:18:00.001-08:00

Happy Thanksgiving! Wow. Where did the last two months go? Hope you are all well and enjoying the festivities! There's been a lot of sickness going around, and we've had our fair share. I think we're finally moving on... just in time for good times of celebration!

Before I go on, I need to get this out of the way...., "New Moon rocks!" There are not words to describe my satisfaction with the film, so all you fellow Twilighters out there..... YIPPEE!!! Hope you all enjoyed it equally!

Okay, NOW.... the much awaited pictures of the Renovation!!! Da-da-da. Thank you to EVERYONE who has helped, and those who have shared the joy of home improvement. We're all pretty crazy, aren't we?! All in all, we are very pleased with the results, and are thankful it's done! Project HGTV inspiration....done. For now!

In October, we were sooo lucky to have KC's parents come visit for a week, and then we went and visited SLO for a weekend! (We so did not plan that right...) We went to California with Sarah's parents to remember her Uncle David, who had passed recently. It was great fun seeing the cousins and extended family. Sad reason to come together, but it was time filled with hugs and support.

While in San Luis Obispo, Tracie shared an AMAZING Halloween dinner with us before we left. What a great way to get "in the mood" for the holiday! We must say, however, that the company was the best part of the whole meal!

As for Spooktacular holiday cheer back home, KC and I participated in Trunk 'or Treat for the first time ever.... had a blast. KC also participated in our ward's yearly Pie, Soup, and Chili night. No awards, but he had a great time! The corn chowder was delicious, and the Bananas Foster pie.... YUM!

We wish you a wonderful holiday! We continually are in awe of our many blessings and hope we show our gratitude by giving thanks and enjoying the love of family and friends each day.

Happy Thanksgiving!

The Only Bride We Saw This Summer...

2009-09-07T02:54:00.000-07:00

We made it back from Washington State just in time to see some more beloved family... the Corless Family! We had sooo much fun packed into just an afternoon; it was magical. (Good job, Dallin!) Due to a construction zone in our house, we favored the great outdoors; Provo Canyon! After enjoying the river for a while, we went to pay our respects to Bridal Veil Falls. What a great time! Kaylee, Michelle, and Ryan were literal monkeys climbing up those cold rocks. The adults all enjoyed the cool water as well; Sarah couldn't get enough of walking around the shallows in her flip-flops. Ah, summer.

We ended the night with watching Space Chimps while KC popped his famous popcorn. Did I say the day was magical? I'd say close to perfection!
Thanks, you guys, for taking the time with us! Love ya soo much!

From Sea to Shining Sea! Part Dos.

2009-09-07T01:20:00.000-07:00

Washington State Trip:

Discovery Bay with the fog in the mornings!

Fort Warton with Artillary Hill, the lighthouse, and beach vistas

British Columbia: Miniature World and Buchart Gardens!!!

All of the Twilight Book sites: Port Angeles, Forks, La Push...Loved it!

The Rain Forests of the Olympic Penninsula: The HOH (Hall of Mosses), Sol Duc Falls

Seattle with the Underground Tour and Pikes Market

Riding the Ferries...couldn't get enough of that!

Washington Coast line, Astoria Bridge

Portland at a glance, time in the car with loved ones to just sit and talk.

We had AMAZING fun! I hope you all had an amazing end to your summer as well! We are hopefully finishing up renovations on the kitchen and living room in the next week or so. I'm really missing my kitchen sink and dishwasher... but it's worth the sacrifice! Time to get ready for school....

From Sea to Shining Sea!

2009-08-14T12:17:00.000-07:00

We've had an amazing month on our travels! We feel so very lucky to have had the opportunities to visit with family and see amazing new things. (At least it was all new to Sarah!) There is so much to tell, it's quite overwhelming, and would probably border on boring, so once again we'll give you the quick list of highlights:

Washington DC Trip:

Seeing Ben Graduate!
Fishing with Isa and Gabi
The Mall with all its museums, Union Station
Visiting the White House, Supreme Court, Capitol Building, seeing Congress in action, etc.
Aviation and Space Museums, Botanical and Arboretums
DC Temple, National Basilica, National Cathedral
Arlington Cemetery with changing of the guards
Looking for John Philip Sousa's Grave.... not finding it!
All the amazing monuments! FDR, Lincoln, Jefferson, Iowa Jima.....
Going up in the Washington Monument with the Krengel Clan
Seeing the National Documents in the Archives with Daniela and Isa
Gettysburg, Harpers Ferry, Antietem,Bull Run
Williamsburg, Jamestown, Yorktown
Other various Battlesights, GREENERY, sheets of rain
Singing "the Wheels on the bus" while we drive our rental Charger
Monticello, Mount Vernon, President Wilson's home
Theodore Roosevelt Island, Georgetown, Old Alexandria, Old Post Office
International Spy Museum, Ford's Theatre

Sooooo much more! It was wonderful, and we made the most of EVERY moment! Thank you to Ben, Daniela, Isabel, and Gabriella for giving us their time; it was a perfect vacation!

Once we got home, we had a day and a half, and then it was off to....

Summer Fun!

2009-07-12T00:44:00.001-07:00

I know, it's still July and I'm posting yet once again? The stars have aligned, my friends.

The house renovations are coming along wonderfully! We are so happy with our decisions in hired help, materials, and effect on the home. We still have quite a bit left, but we're going to take a break for a few weeks and just let it marinate...or cure...or pickle... (p.s. I'm talking about the house, not our sanity!)

Remember, Celebrate, Fight Back, Have Hope.

I didn't write about it last time, but in June we were able to attend the Relay for Life here in Orem. It's a fundraiser for Cancer research, but they also use it as a celebration of life! Cancer survivors in attendance were celebrated (I stepped into the limelight for a bit with the others to get a really neat medal), there was incredible music, food, speeches, glow sticks, and walking around the track to earn money. At 10 pm they lit luminaries around the track that people had decorated in honor of people in their lives that have dealt with any form of cancer (it now affects 1 in 3 people!) It was really special. My family was there to support the cause, and it was definitely a bonding experience! It got a bit sentimental as we reflected on the strength of those we love who have survived or died with cancer. I'm not naming names here, but you know who you are. We love you.

The 4th of July was a lot of fun at my parents' house. The Hansen family was able to spend the night along with us; the Olsens met up with us for a BBQ and to serve as tour guides in their new home; and Amy came for the firework extravaganza! We played lots of games, laughed and snacked, and then NAPPED! It was a true Krengel weekend.

Lately I've noticed our pets are just cooky. I know we all love swapping crazy cat and dog stories, but each of our animals have really been showing off their personalities lately, and it's been enjoyable to have them in our lives. Gabi and Fin are finding all sorts of places to sleep after their games of hide-and-seek around the house. Binks and Chewie found their new favorite summertime treat: Otter Pops!!! They just can't get enough. Poor KC has to share...not that he minds much!

I hope you are all enjoying your summers as well. I hope they take you to loved ones and cherished memories; isn't that what this season is all about?! 'Til next time...whenever that may be....

What a Summer!

2009-07-05T19:38:00.000-07:00

Happy 4th of July!

Let Freedom Ring throughout our land!

I hope everyone had a great weekend full of family fun and safety! I'm so glad we've had all the rain so there wasn't so much anxiety about landscape fires this year. Another thing to be grateful for! Crazy Utah weather.

So, for those of you who don't know, we've been renovating, and renovating, and renovating.... those with experience in these matters are probably chuckling because you know how it tends to go on and on. Yep. We've joined the ranks. Here's a bit of a timeline of our awesome mock-HGTV moments:

Last week of May: We got a dumpster, so KC went demo-crazy! The kitchen, the living room, the porch, the shed, the dogrun... Things were falling down around us; in a controlled and organized way as only KC can do it! Alright, so my dad helped a lot; and my mom and I helped a bit, too. I have to admit, it's fun to destroy drywall.

Month of June: We had a few weeks when the project seemed to come to a standstill; but it ended up being much better for us. We found amazing guys to work on our home! Thank you to our electricians and plumber! As for Shawn and Mike, our drywall maniacs, they rock. Seriously.

Month of July: Hurry and put it all back together before we go on vacation....go! Faster! Hurry! We still have a lot of tiling and painting to do, but it's coming. Our new kitchen cabinets will come soon, so we'll get to update the REAL before and after pictures then!

Uh, everything's under control. Situation normal....boring conversation, anyway. ---Han Solo

2009-04-24T16:42:00.000-07:00

Han Solo: [sounding official] Uh, everything's under control. Situation normal.

Voice: What happened?

Han Solo: [getting nervous] Uh, we had a slight weapons malfunction, but uh... everything's perfectly all right now. We're fine. We're all fine here now, thank you. How are you?

Voice: We're sending a squad up.

Han Solo: Uh, uh... negative, negative. We had a reactor leak here now. Give us a few minutes to lock it down. Large leak, very dangerous.

Voice: Who is this? What's your operating number?

Han Solo: Uh... [Han shoots the intercom]

Han Solo: [muttering] Boring conversation, anyway.

*********************************************************************************

Today I met up with Amber in the lunch line, and her usual enthusiasm bubbled over; "You wrote on your blog! Great job!" (Love that girl!)

"I did?" Now, I know my memory isn't so great most days, but surely I would remember crossing off an accomplishment off my list... "Are you sure?"
"I think so... maybe your husband did it for you?"
Now my curiosity was peaked. I found myself quickly at the computer once I got home to verify the facts. 1) No, my awesome husband did not moonlight as me, and 2) my list was not behind in its crossed-out undertakings... but now I'm here and motivated! Thank you, Amber!

To get the medical update out of the way, my treatments continue, fatigue is an interesting companion, I can't brag about my care at the clinic enough, love the pain meds, thank you for all the compliments on my hair, and I'm extremely humbled and blown away by the love people share. I think I love Han's answer the best: situation normal, and it's a boring conversation anyway! So, on to the fun things of life!

MARCH: Twilight party!

Of course I had to celebrate the DVD release! My amazing friend, Amanda, and I went to the midnight release together. She is true friendship. To love someone enough to not laugh too much at their wierd obsession, to stand by them while your ankle is KILLING you, and to still have a great time... that woman is my hero. It was awesomeness to the definition.

The next night my sisters all came over for a "viewing". But, the Krengel in me wouldn't let it just be a simple "Let's watch the DVD we've already memorized". Oh no. My dad (and mom?) even made a trivia game so I could give away the "golden onion" award. (movie reference, if you are lost).

Of course the downstairs was decorated for ambiance. We also ate a meal similar to what Bella and Edward ate on the "night of revelations", and then we turned into little kids with our party gifts of baseballs-the great American sport. Ummm..... we had A LOT of girly fun!

APRIL: The Easter that lasted a month; the pleasures of California!

Holidays are definitely cuter with little girls running around in spring dresses, or little boys running so fast they are tripping over themselves to find eggs filled with dentists' nightmares! We were soo lucky to spend Easter time with many of our family. The games and just "time" were a true gift. Oh, and we did pay homage to the Haufbrou and the IN & OUT shrines.... several times. Such good food! Seriously.

OVERALL INSPIRATIONS: The last few months have been very inspiring and motivational.

Conference is always one of my favorite times of the year, and as always I was transformed spiritually by the messages, wisdom, and testimonies shared. Now I just need my physical transformation to catch up! Sometimes this body can be a much slower learner...

If you know me, you know I love my job. If you know me, you know I love hiking in the mountains. These two passions met at a leadership conference I was lucky to attend. I met Erik Weihenmayer! "Who's that?" you say? Probably one of the coolest people in the world. I think he's made my top 17. Of the highest summits on each continent, he's climbed 7 of them. Oh, and he's blind! He was amazingly inspirational in his presentation. I wrote copious notes, and have been reading some nonfiction-inspirational books since. What can I say? It's my new thing for now. My mom has always had the mantra that "We are pioneers", and she truly is one. Erik shared many ideas on the pioneering spirit that really struck a chord with me. Here's some paraphrased notes:

Pioneers understand that life is one continuous cycle of reaching out through our fears.

How do you enter a storm and not only emerge unscathed, but stronger?

Is there a coorelation between being a pioneer and adversity?

They don't find a way despite the storm, but because of it.

I also loved Erik's thoughts on being "modern alchemists". These are people that take what they are given, and no matter what it is, they turn it into something of greater value. I want to be that kind of a person. That inspires me. So, sorry jedi's and hobbits; my path is one of an alchemist.

P.S. You have to know, my tenacious mom suggested maybe a pioneering alchemist? I'm thinking about that... but that's an incredible set of parameters. Maybe when I reach alchemist, I can move on to pioneering alchemist....."small moves, Ellie, small moves".

The rest of my times are peppered (or is it salted? How about "well seasoned"?) with inspirational moments with the people I see each day: a nephew feeling the excitement of learning something new, a friend's arm around the shoulder and a shared chuckle, a father taking care of his beloved wife, a mother putting on a happy face even when it hurts, the miracle of tulips, a morning talk to start the day with a laugh, a child's joy in success after a lot of trying, a forwarded email that puts Hallmark to shame, the return of love from family members...the list could truly keep going.... KC and I say it often; we get to witness an amazing life.

Lastly, inspiration isn't always something to tug the heartstrings. Sometimes it's just motivating. So, for those of us who are struggling with one thing or another and the warm fuzzies just don't do it for us today, I'll end with another inspirational person's words: "If you are going through hell, keep going." ~Winston Churchill.

Good luck today. May your conversations be anything but boring!

Over and Out.

"In three words I can sum up everything I've learned about life: It Goes On." ~Robert Frost

2009-02-07T21:45:00.000-08:00

And so it goes!!! Although, before I move on into my commentary, I have to say a very close runner-up to the title was: Attack life, it's going to kill you anyway. -- Steven Coallier. Those gamers are deep, man.

Today is my one year anniversary! Can you believe it? My friend, Brad, wished me a "Happy Birthday" on the 5th. We kindda laughed, but we both had near misses last year, so it was a sweet moment of gratitude for our added years. Not many of us celebrate getting old, but I will from now on!

For those of you not so familiar with the story, KC took me to the emergency room the morning of the 5th, which started a day and night of tests and surveys; but the 7th is the day my diagnosis was made. In the morning I went back to the hospital to be sedated for my bone marrow biposy/core sample, returned home for a little nap, and then was called into Dr. Bott's office to hear the news. KC, my parents, and myself learned about the protocol I would be following, and I was told to check in to the hospital for my one-month stay of intensive chemo. Luckily, there was a delay in my room being ready, so I got to go home and play my piano a little and snuggle with KC on our bed before checking in to the hosptial. Can I just say... I am soooo glad I get to sleep on my own bed tonight!!! The little things... it's all about the little things.

To celebrate this momentus day, I slept most of the day yesterday, and most of the day today...on my bed. Boy, am I a party-girl, or what? I did go to the hospital with a care package, though, to thank all the staff for the TLC they delivered while saving my life. The cancer clinic will get theirs this week when I go in for my weekly visit. If I could send one to everyone who donated blood and platelets, I would be all over that. What an amazing thing, this science stuff. I'm still pretty humbled and awed by it all.

And as for the emotional cheering and service done by family and friends... I only hope I can be such a friend in return. Thank you. You make life worth living.

Well, to commemmorate this celebratory and miraculous and festivus day, I have penned, or tapped, my own top 10 of this last year, living with Luke 'n Mia.

10. Wearing my PJs for 2 months as a fashion trend- I highly recommend it.

9. I've heard a 4-month vacation from work can be rejuvenating... but I don't remember most of it. Does that mean I'm rejuvenated?

8. Reading the Twilight series while getting transfusions; if that doesn't mess with your head, I don't know what will.

7. My slight case of germaphobia was once mocked...not so much anymore. Though KC reminds me often I DO have an immune system again. Whatever.

6. Friends are your friends...not matter what. It's never too late to reconnect. Never.

5. Only an idiot would think they could survive without family. They are everything.

4. Some hats work better on a bald head.

3. I'm a much better listener when I have little energy and more pain meds.

2. Wheelchairs prevent sweating for the rider, but increase it in the pusher. Who would have thought?

1. The interest in my hair has me feeling like Robert Pattinson...but yes, it is nice to have it back. No, it was not curly before. Yes, it is darker. See the evidence:

Now, the analyst in me looks at this list and wants to keep changing it, so I've just got to leave it as is...I'm moving on.... now...

Okay, so another great quote 'o the day is this: "Difficult times have helped me to understand better than before, how infinitely rich and beautiful life is in every way, and that so many things that one goes worrying about are of no importance whatsoever..."-- Isak Dinesen.

First of all, you gotta love a woman using a pseudonym like Isak Dinesen. Secondly, this quote really speaks to me. I have usually been a person of 9 back-up plans for every plan; but lately I just don't have the energy for it. The beauty is that I've realized I really don't need all those back-up plans. Ah, so that's the simplicity they keep telling us about!

Well, I hope something here made you smile. I hope you have something to celebrate as well! Live is too short to wait for "the calendar's" days of celebration... add many more of your own!

To end tonight, I'll quote my dear childhood friend, Gidget. "Toodles!"

Family, Friends, and FUN!

2009-01-19T15:08:00.000-08:00

Happy New Year! Much apologies for the lack of writing, but sometimes you get in the habit of putting your head down, doing your stuff, ... and repeat. Then you have wonderful moments when you lift your head up, and realize there's a big, beautiful world out there! So, I've been exploring the world, and am now ready to report!

For Thanksgiving KC and I traveled to Redding, CA to visit most of the Scott family. What a wonderful visit! Kids grow up so fast; I just want to hug them and tell them how amazing they are every moment, because they change sooo quickly! Carrie and John were amazing hosts, and the turkey... fantastic! The traveling wore us out, but it was totally worth it! Five highlights for me were 1) Tracie and I sharing our Twilight obsession with Mom and Carrie 2) Swimming for the first time in over a year, and getting to share it with my little neice, Emree 3) Listening to Ryan play his French horn 4) In and Out... need I say more? 5) KC, Dad, Mom, Carrie, John, Ryan, Michelle, Kaylee, Dallin, Brennan, Tracie, Teagan, Kaden, Garen, Emree!!!

December... one of my favorite months! I love the decorations, the music, my tree, the snow. The whole season just gives you warm fuzzies! Unfortunately, I spent the first 15 days taking my ATRA (the 10 pills per day that targets my specific leukemia). That stuff really kicks my trash! So that, combined with my daily chemo pills and weekly chemo shots... I wasn't much good for anything. My poor students! They braved the month with a very tired teacher, and still came out smiling. (Although that probably had something to do with not having school for 2 weeks and Santa...!) I was able to realize once again how blessed I am, though. My dear friends at school found so many ways to make it a bit easier for me day to day, and did it before I could ask. How did I get to be so lucky? I want to be like them when I grow up.

We spent a lot of the time off of work with the Krengel side of the family. Games, games, games! I am happy to report I am a "Ticket to Ride" champion, and enjoyed many other new games. Although, I think if my brother and his family were with us, there's no way I'd have that title! Ben and Daniela are good at those games. Period. Raving Rabbids on the Wii has really made me realize that I need to get my strength back. It's not right that a little piece of plastic can wear you out just by waving it around over and over!

The best present of all, I think, was our new little neice, Elliot! She made her grand appearance the morning of Christmas Eve. What a cutie! She's the type of baby that just snuggles into you, and you could sit there for years holding her. Really; and I'm not a "baby" person! We also had visits from Brennan and Tracie's family, and my dear friends from out of town.

The first of January, KC went to Tennessee to visit family. (Sooo jealous!) He had a wonderful time, and lots of "boy time". Since he's been back, I think we get at least one quote a day from one of our clever nephews! Like I said before, they grow soooo fast! Kaleb, Tyler, Derek, Logan... stop it! Okay, you can grow a little at a time.

So, as I draw the novel to a close, things are great. Anytime I get a little anxious about my "numbers" or treatments, I look around and slap myself (just not on the hip). Things could always be worse. I'm happy and grateful for the lot that's been given me, and strive to show gratitude for it. Our loved ones are happy and healthy, and that's really all that matters. As I look at all the things we enjoy, I acknowledge that we are truly blessed. Truly.

"The world's a mess, and I just need to...Rule it!"

2008-11-10T00:56:00.000-08:00

Thank you, Dr. Horrible! Gotta love those quotes.

So, how about that Election!?! Wow. History in the making. "And that's all I have to say about that..." Thank you, Forrest.

I promised to update after my last doctor's appointment, so here it is. My numbers stayed about the same as last month (statistically speaking), meaning that my platelets are still low, but my immune system and blood cells are okay. Darn; no football practice for me! I guess I'll have to put my dreams aside for a while. (hehe)

After some consultation with the Doc, we decided to not worry about another bone marrow biopsy yet. If more leukemia starts happening, we should see it in the bloodwork. So, we started the maintenance stage of my protocol. This includes weekly shots of chemo, daily pills of another chemo, and then my 2 weeks of ATRA pills every 3 months. I do bloodwork every week and see the doctor every other week, so I'm being monitored very well. "My" clinic is amazing; truly.

I braced myself for the rollercoaster, but it actually hasn't been that bad. As long as the drugs don't build-up in my system, and the effects are on a sort of plateau, then no worries. I can do this for the next year or so. The real struggle is keeping a mindset of simplicity!

A favorite night was Halloween, when I was able to talk to almost EVERY niece and nephew. So cool! My favorite quote of the night was from Michelle, who asked something like:

"Aunt Sarah, is your hair still brown and all spikey, or is it back yet?"

I got quite the chuckle. I might define it as fuzzy verses spikey, and my apologies for any misquote. Love ya, Michelle!

I had great plans of creating a Halloween costume so I could be "procrastination", but unfortunately it came to fruition instead of an actual costume. Oh well. Maybe I'll do it next year... Seriously, I did not plan that.

Another amazing day was when KC and I took the dogs for a small walk in the canyon. We clocked the distance by car afterwards...2 miles. TWO MILES!!! That may sound not very far for all you athletic folks out there, but compared to what I've been able to do the last 9 months...I felt like Superwoman! It totally boosted my ego.

Not much else to report... we've been witness to much good news and recovered health to many of our family members and friends. That creates lots of smiles on our faces! KC and I send our love out to you all. Enjoy these coming holidays!

~Sarah

Scary Things Happen, Go Forward Without Fear

2008-10-17T08:36:00.000-07:00

"Oh! Spooky, spooky, spoooooky spooky!"

---Scooby Doo

Happy Halloween! As much as I love summertime with all the heat and fun; as much as I love wintertime with all the snow and snuggly moments; and as much as I love spring with all the awakenings and surprises each day; I love fall! There just seems to be an energy in the air. The leaves are an hourly changing canvas to the anticipation of the holidays approaching. Hearing my friends talking about all the canning they are doing, stocking up their pantries with goodies energizes me. (Seriously, my jaw drops when I think of how much they accomplish in the hours between 5:00 pm and 6:00 am.) The added fun of decorations and celebration just helps me realize that life is full of joyful moments.

I try not to get too philosophical in these blogs, but with all the focus on the election and economic, medical, and educational problems our country faces, my mind and recent correspondences have seemed to dwell on the scary situations that we are facing. However, as I enjoy the good times with loved ones day to day, I feel blessed to have reminders to ease the burdens of this thing called life. Here are a few of my ponderings...

1) Just like our gardens have been nurtured and cared for, we need to nurture and care for our well being. We need to do all we can to be healthy (spiritually, physically, emotionally), educated, and financially sound. Then, just as we preserve our labors to sustain us for latter days, we can rely on our preparation to sustain us through any bleak times we will encounter in our future.

See the benefits of lunch with friends? I think if the school board knew how profound we could get at lunch, they might give us a longer break. I'll work on that... p.s. I was really sad to put my garden in the recycle bin...good times and good flavors...

2) The colorful mountains show that change is not always bad. It can be renewing, and have beauty of its own. Change is also part of life. All things have cycles and patterns which they follow. If you know these cycles and patterns, you can watch with peaceful understanding, enjoying the view.
Walks outside and time with the dogs; much better than a sweaty gym; better smelling, too; most of the time. Sorry, Jes!

3) Just the opposite of KC and Amy, I hate scary things. That thrill of having something startle you...yeah, not for me. Recently we were at Lagoon's frightmares. My parents and I were reminiscing about what a whimp I was as a kid (still am), and how much they needed to reassure me through the haunted houses, slides, and such. I then watched my nieces who saw the scary decorations around the park. They laughed or shrugged at them, and then qued for the exciting rides they wanted to enjoy.
It reminded me of a time that Ben and I were watching Scooby Doo as kids, and Shaggy and Scooby were scared of an area they had to enter. Scooby commented it was scary, and Shaggy said, "Ooh, don't say that.." Then Scooby said it in a spooky voice. That scared Shaggy even more. So then Scooby said it over and over, in a funny, questioning way, which sent Ben and me into a FIT of laughter. To this day, I can still hear Scooby and see the two of us tearing from the laugh.
We can do that, too. Find reassurance and knowledge from people you trust, including God. See the scary things for what they are, laugh or shrug, and move on to what we really came here to experience.

Huh. Deep thoughts at Lagoon, who would have thought?

So, I'm definitely not a shining example of these ponderings, but I'm working on the lessons.

Well, now that I've used a lot of words....I'll try to do my updates in quick fashion.

(Hey, does this count as publishing a novel?)

*At the end of September, we checked my blood numbers again. They are slowly coming up, but my platelets still need to be higher for the next round of treatment. My next update will be the end of October. The great news I received, is that I only need to take the ATRA every 3 months, not every month like we previously thought. Hooray!!! This really helped during parent/teacher conferences a few weeks ago. I thought I would be at a peak of a cycle, experiencing many side effects, during conferences due to the ATRA; but I didn't have to take it that month! Amazing blessing. So, in a few weeks we'll check the blood again (just in time for Halloween!). If the numbers aren't high enough, we'll do another bone marrow biopsy to see what's going on.

*We had a great visit with Mom and Dad Scott in early October. So fun to be with them! Yea, you should all be jealous.

*People have gotten older and fatter, and we are celebrating it ALL!

*Twilight movie MUST come to theatres soon...the obsession has returned. My cure? Healthy doses of other books. Seriously, I think my friends and family are coordinating an intervention with all the piles of great stories that are appearing in my life; and I want to read them all; right now!

*I got to play in snow. Welcome to Utah.

I'm signing off. Things to do, places to go, people to tackle. Until next time; live well, be happy, and don't let the scary things distract you!

Enjoying the Snooze Times!

2008-09-21T23:19:00.000-07:00

Ahoy, me hearties! Did ye all celebrate International Talk Like A Pirate Day? I quite enjoyed my fun on Friday, and I haven't quite purged it from me system yet! I e'n witnessed a treasure hunt... it was a great end to the week! Aarr!

Well, I knew I better update my blog when a dear friend called this week worried I had disappeared into the sanitary halls of the hospital again because she hadn't seen or heard from me in a while! Oops! No worries. I'm fine. I'm just really boring, and I didn't want to send anyone into an unneeded coma. I shall try and make ammends!

The really big change for me this last month has been teaching again. I am loving being back with my incredible friends and cherished students! I am so lucky to work with people I truly care about, and who laugh with me multiple times each day... you should hear us at lunch! In addition, the puzzle of teaching curriculum and tapping into students' learning processes are soo invigorating for me. I get excited just talking about it! It does take a lot of energy I've come to realize; hence the boring part of me in the hours I am not teaching, but the energy is little payment for the reward I receive.

This year's group of students truly knock my socks off. They are so eager to learn, and always seem to be trying so hard to do their very best. It's inspirational just watching them, and the comments they make are many times commically insightful; I love my job!

I also get the gift of seeing my last year's kids in the classrooms surrounding mine. Yes, I know it sounds possessive; but to me they will always be my kids! It is so heart-warming to see their smiles and talk with them about all the great things they are doing. What innovating youth, who are busy living exciting lives! Good for them; I'm so proud.

Another exciting event was a BBQ with many of my friends from my high school gang. SO FUN! It is a miracle that we can go for years without seeing eachother, and then when we reconnect, it's like the time didn't matter. I felt as close as I did when we were 17/18 and working on conquering the world. We're still working on that, by the way. The only down side of the evening was the proof that I am indeed getting older. Babies turned into teenagers "overnight". We're not that old.... are we? Yikes. Later that night KC and I kept commenting on how special it is, that we have friends who can stand the test of time. I am truly lucky and blessed. We are eagerly looking forward to the next shindig, or whatever else we end up doing together!

As for the medical update, (I just can't seem to sign off without one...) I've been proceeding with the treatments...partly. At my last appointment, my platelets were still too low to start the full next step of my protocol. "The status is NOT quo!" (for all you Dr. Horrible fans!) Not wanting to delay too long, I've started the ATRA again and am waiting to start the daily chemo pills until the numbers are better. The doc gave me a month between my appointments, so it's been a bit strange not going into the clinic for so many days.... but much more "normal life"! I'll be taking the ATRA 2 weeks on, 2 weeks off, etc. for... I don't know how long. I have experienced some side effects, but nothing I haven't already experienced. The side effect that probably impeeds me the most is the fatigue... wow. But in my 2 weeks off, watch out! I'm a whole different woman. All I can say is that KC deserves a medal of somekind. He's been a great support and model of selflessness as he helps me accomplish what I need to each day. I'm so glad I had the great taste to snatch him up the moment I saw him! Not to get mushy on ya, but I truly, deeply love that guy!

Well, happy trails to you all. I'll work on being less boring in the coming days, and maybe I might just post again soon. Then again.... you never know. I am a creature of habit! Love, love. ~Sarah

Great News!

2008-07-21T14:56:00.000-07:00

REEally? It's already the end of July? Where did it all go? I know time went much slower back in February. Oh well. I'll just adjust to the time-speed-travel phenomenon, but if someone finds the switch, slow it down a little, would ya?

My great news is that this last Monday my doc let me know that my most recent bone marrow biopsy showed no signs of the leukemia! Isn't that fantastic?! I now have the definite and sure "Okay" from him to go back to work. Hallelujah! I love my job. :-) I'll still be going through more treatments for the next year or so, but supposedly they're not bad enough to impair my awesome teaching opportunities... yahoo!

As for our other news, we had a great time in New Orleans. Here's our trip in a quick list:
visiting 6 plantations
eating alligator (if you want to count my 2 bites of it "eating"...not ordering that again!)
boating the bayou
eating great food (even seafood) at amazing historical restaurants
walking/wheelchairing around the French Quarter and cemeteries
inhaling beignets
enjoying some AMAZING Jazz Music
devouring Bananas Foster
learning in great detail TONS of history...including Napoleon, Creoles, Louisianna Purchase, several wars, and Hurricane Katrina
nibbling on pralines
visiting the Gulf of Mexico and

Lake Ponchatrain
sharing muffeletas
riding the riverboat
amazing food with ambiance galore
Mardi Gras World and Mardi Gras museum
really good food
riding the cable cars
eating popcorn while watching Get Smart
walking along the barataria
did I mention the awesome food that we had?
seeing art, doing puzzles, reading books, and visiting the botanical gardens.
I almost feel that I should end the list with, "...and a partridge in a pear tree!" oi. Needless to say, it was fantastic! The weather cooperated so well, but really the best part of the trip was spending time with Mom and Dad Scott. They are quite the witty and enjoyable couple, and we love joining them as often as possible!

I only mention this, because many people have asked...I was not able to up to YW Camp. I really missed being there with the ...young women and younger women.... especially with the stake leaders being so great to keep me included in so much beforehand. (They are incredibly caring, nurturing, and amazing women; I really have taken them to be examples in my life to follow!) It was verrrry sad for me, but I was stuck doing transfussions all week. Blood, platelets; the usual drill. It was a definite Bummer.

Speaking of blood and such, if anyone has a great cure for my obsession with the Twilight saga, let me know! I'm hoping the fourth book coming out in a few days will give me some closure and put an end to the constant pull I have to reread passages, read excerpts and outakes on the author's webpage! Oh, and the movie's trailers...you've got to watch them at least 3 times to get any satisfaction before moving on to something else! I'm such a dork sometimes! (...but I can't stop!) "Team Edward!"

Well, these next few weeks I'll be getting ready to go back to the classroom; I'm so very excited to see all my friends and "kids"! I hope ya'll enjoy these last moments of summer and make the most of them. This summer has been so wonderfully filled with friends and family; it's a bit sad seeing it come to an end. I'm just bracing myself for the zucchini and tomatoe wave to hit. Good luck to all those fellow gardeners out there!

~Sarah

So Much to Celebrate!

2008-06-11T08:23:00.001-07:00

Wow, these last few days have been in the category of "perfect weather". The sky is blue, the mountains are green with still a bit of snow at the very peaks, and a warm breeze keeps the bugs off ya. It's one of those things that make you grateful God has a good eye for design!

Sorry it's been so long since my last post. Each time I found myself at my computer it took FOREVER for blogger to load up, so I would get distracted and then procrastinate writing until another day. What? Sarah procrastinate? Never! Hah! I guess I'm feeling a bit better. ;-)

Kat's wedding was a blessing of precious family time. I think it was everything she hoped for, and the rest of us had a splendid time, too! It was great hang'n with some of my cousins and getting reaquainted. I almost feel you could roll the STAR WARS storyline for the last time I saw them. A long, long, time ago in a far away galaxy..... Ah, good times. The "adults" were much needed medicine for the soul as well. Did I say we fun? It was great. One of my favorite moments from the wedding was at the end, when all my siblings went onto the dance floor with their children. All the little nieces' eyes lit up as they were twirled, spun, and bounced to the rhythms. The rest of us sat back and clapped with glee, our hearts bursting with warmth at the sight.

Although it was postponed a week due to my "numbers" not quite strong enough, I have now had my LAST round of chemo! Hurray!!!! It feels so good to know that I don't have to prepare for my next "dip" and I can just concentrate on getting stronger. This time around has been a bit easier than the last. A blessing I continue to feel humbled by is all the many people who donate their blood, platelets, etc. I've lost count of how many transfusions I've needed, but I am in debt to many people for their kindness of LIFE. It's amazing the difference blood makes in how you feel and function! I have also spent time feeling grateful that my condition and difficulties are temporary. To know that I am progressing through the protocol of treatment, and that there will be an end at some point that leads to health is thrilling. I know many others don't have that luxury, so I celebrate it as much as possible.

My birthday was last week, and I really was missing the opportunity to go golfing or hiking, the activities I usually hope for on my "special day". A friend of mine gave me a DVD of one of my favorite hikes (which I LOVE), so that I could enjoy the views from my couch and play "make believe". I was mentally putting that on my list of birthday activities, until my mom and I came up with a plan of creativity. We had a Princess Party! I invited all my nieces here in the area to come, dressed to rule in their disney costumes (plastic heels included) for my celebration, and insisted on my sister, Princess Jessica, and my Princess Mom/Grandma to join me in wearing our foam crowns. My dad and KC were excellent princes as we played bingo and "place the princess in the castle" (a version of pin the tail on the donkey), made crowns for the little princesses, took our pictures in Cinderella's coach, and had a feast of grilled cheese and carrots. It was perfect! We even decorated the kitchen with netting, ribbons, and roses and had a princess soundtrack to set the mood. I was tickled that we got to celebrate in a way that I could still sit down most of the time, but enjoy some fun.

My other celebrations have been talking with good friends, spending time with family, endulging in my reading, and looking forward to visits with the Scott side of the family! Truly, each day is a wonderful thing to look forward to.

Well, I hope this summer is finding you well, and with many fun plans...or no plans at all! Sometimes no plan is the one looked forward to! I'll try to be better at this blog thing and increase my patience for technology. Onward to health!

~Sarah

Finding the Purrrrfect balance of naps

2008-05-03T14:11:00.000-07:00

Wow, is it already another month! Time can slip through our fingers so easily....
These last two weeks I've been learning and mimicing the habits of our two cats; let me show you what I mean:
Habit #1: the sleep to awake-time ratio should be about 3:1
Habit #2: any type of space constitutes a bed
Habit #3: during awake hours, it is still proper to yawn, look sleepy-eyed, or doze off
Habit #4: looking out the window while sitting on the couch is a nice pasttime
Habit #5: bug KC long enough and he'll get you something to eat (or meds)...although he reacts much quicker to me than the two felines.

You see? Instead of the pets taking on the characteristics of the owners, I fear I have gotten the formula backwards. Oh well, I'll think about it during my nap!

This last chemo round was a bit rougher than the last. One cool note, is that it was cookie-monster blue in color! Most days as it would start, I could hear the song in my head..."C is for chemo, that's good enough for me.." This time my blood counts did drop all the way down, so I've had some transfusions and had to be careful due to no immune system. There were a few other side effects, but I am always grateful that they are temporary and mimimal.

We are getting very excited to see all our relatives who are able to make the trip for Kat's wedding...Yea!!! I'll try and adjust the sleep-awake ratio a bit when they arrive...just for them!

Not Much of an Update, but Lots of Words!

2008-04-23T09:17:00.001-07:00

ABC's of Me
Here's the first tag I have received. I'm usually not one for sending things along when I get the emails of "send to 4 people you know...", but I thought this was a pretty cool one to do. It reminds me alot of the ABC poems I make my students do, so I thought, "What the heck?" Besides, I loved reading Alison's, my sister-in-law who tagged me! Hope you enjoy...

A. Attached or Single: Attatched for always to my best friend, KC; the only man who can get close to reading my mind and heart!

B. Best Friend: Um...I think I just answered that; although I have many girly friends who take the bill as well! Family members; can't leave them out of that title either, they are always there for me love me despite my many faults.

C. Cake or Pie: CAKE! Chocolate all the way, baby. Although I love it when it has mint frosting on top! Oh, and peanut M&Ms in the middle! ;-)

D. Day of Choice: Any holiday! I love all the traditions and joys they bring, the emphasis on seeing the good in mankind, and the focus on God and Family.

E. Essential Items: Hat, glasses, jeans, T-shirt, sweatshirt, keds, good book, drink, chapstick.

F. Favorite Color: White because in light it is all the colors...I'm not very good at choosing favorites, can you tell? My favorite colors to wear are black, brown, blue, green, and red.

G. Gummy Bears or Worms: Gummy bears! Worms have that wierd texture to them. I also have fallen in love with Kat's passion of chocolate covered gummy bears; so chocolate and spicy!

H. Hometown: I would now have to call Provo my hometown, because I have lived in it now for the longest time. And to tell the truth, I love Provo. There are so many things to do, all four seasons, lots of family oriented activities to do with my nieces (and nephews when they're around!), we have mountains, lakes and deserts...it's just great. I have also lived in Centerville, UT; Alb. NM; SLO, CA; and for a very brief time KC, MO. I've really loved each place, finding unique things that make them interesting. I also have realized that many times it is our memories of a place that give us our opinion of it, and I have so many great and amazing memories in all these places!

I. Favorite Indulgence: This is hard to answer, because I can't access many of these right now, but I'll speak from my normal life. Pedicures, massages, Pepsi, peanut M&Ms, hiking, swimming, hottubs, sleeping in my bed, watching Survivor with KC and our cats, gardening, game nights with my family, traveling, reading a good book, playing in the yard with my dogs. There are so many more, but I could really go on too long!

J. January or July: July. Mostly because I'm on my summer break, so I get to plan my days. However, I love all the parades, fireworks, picnics and heat July brings. It brings back a lot of memories of marching band; luckily mostly the good memories! I just love the carefree feeling of summer.

K. Kids: Yes, but in a broad sense. My students are my "Kids", and I miss not being with them. Let's see...over 500 kids so far. They crack me up with their jokes and dazzle me with their understandings and talents. I truly enjoy the part they play in my life. I also have many amazing Young Women from my neighborhood that I love like sisters. (Can I still keep them in this category, though?) They strengthen my testimony of God, and help me continually feel young and "hip"! Some people might think my dogs and cats...but they're just dogs and cats!

L. Life is not complete without...: My husband, parents, brothers, sisters (these include "in-laws"), extended family, God, Jesus Christ, the Holy Ghost, forgiveness, prayer, love, joy in friendship, the priesthood, temples, sunshine, wind, rain, snow, trees, flowers, mountains, oceans, music, laughter, learning, growth, moments of reflection, personal action, passion.

M. Marriage Date: June 16, 1995

N. Number of Brothers and Sisters: 1 Brother, 4 Sisters, 4 brother-in-laws, 1 soon-t0-be, 4 sister-in-laws

O. Oranges or Apples: Fresh oranges, but apple juice and sauce.

P. Phobia or Fears: Sitting in the middle of an aisle at a movie theatre, sharing a drink with someone (although I quickly got over this when I was on a hike without any water...thanks Brennan and Dad!), and my newest one is feeling skin sensations while taking chemo

Q. Quote:"I can do hard things"~Susan Tanner, "We can do it; we are pioneers!"~ my Mom (much to my chagrin!)

R. Reasons to smile: Hum...so many! The joy of each new day, feeling love for and from others, recognizing miracles all around us, all acts of kindness and tenderness.

S. Superman or Wonder Woman: Wonder woman did help me learn how to jump into the pool when I was younger (thanks to my wonderwoman swimsuit), but Superman has such a cooler outfit and powers... and talk about hunkalicious! I think I go for Superman; but that may change in 5 minutes, who knows?!

T. Tag four People: Like I said before, I'm not one to send along "tags", so if you like this one and want to try it, go for it!

U. Unknown fact about me: I tend to share alot of myself, especially with my students, so they know most of my wierd and crazy stories of my youth. Hummm.... How about that I have a secret desire to go snowshoeing one day? I don't think I share that one often...

V. Vegetable: Most Vegis! Did I mention that I love gardening? I wait all year for my zucchini and tomatoes (although technically a fruit), and I have an amazing craving for carrots these last months. Salads have always been one of my favorite things to eat, as well.

W. Worst Habit: Hitting the snooze button a few more times than planned, loooong showers, getting to work late. Oh, and the ever present stinger...procrastination! My new one tends to be getting long-winded in emails and blogs!

X. X-ray or Ultrasound: X-rays. I think it is so amazing to see the skeleton! Also, there is much less "prep" work, if you know what I mean...

Y. Your favorite food: Steak, salad, garlic mashed potatoes, asparagas, hawaiian haystacks, sweet corn, chocolate

Z. Zodiac Sign: Gemni

Well, there's me in a brief alphabet. As I read back through it, I keep thinking of other things to add, but I must stop at some point!

I'm in a current round of chemo this week, and all is well. I have a few different side effects, but nothing to talk about. All is well, and on Monday the doc said that he's very happy with my progress...no hospital revists!

Last week I went to the Tulip Festival with my mom and Amy; here's a few pictures from that. We were a bit sad, because there was only about 20% of the bulbs blooming as of yet, but it was enjoyable all the same. I guess we'll have to go back another day for the usual splendor of color. We were planning on having our wheelchair races, but alas, they were all being used already. So, the leukemia patient, the recently recovered surgery-for-ever patient, and the young'un with major back issues all walked the entire way. Boy, are we amazing, huh? We definitely got our workout in; Jesse would be proud!

Have a great week! ~Sarah

"Oh, give us pleasure in the flowers today..."

2008-04-13T20:52:00.001-07:00

Hey Everybody!

Don't you just love Robert Frost? He and Langston Hughes are my favorites!

I've just finished my first week since the beginning of February with absolutely NO chemo. Yippee! The 10 daily pills I take have now switched to a protocol of 2 weeks on-2 weeks off. I almost feel a little crazy as each morning and night I keep thinking, "What have I forgotten today? I know something is missing..."

The not-so-crazy good news is that without the daily stuff, I have felt more energy coming back. Yea! The other day I felt almost guilty for not being at work. My apologies to all my dear friends and students there...and if it helps make amends, I felt homesick for them. Luckily,
this is springbreak for them, so we all get to play hookie!

KC and I have tried to take advantage of the energy to do some small cleaning and organizing jobs around the house. Imagine that...spring cleaning! Boy, it feels good to check some things off my list that have been there a long time! I'm thinking I can now justify all those hours of HGTV, because I did much better getting rid of stuff I never use and I've had a few great new storage ideas. I'm a house-cleaning diva! (Although props to KC, he's quite the task-master as well.)

I've also been grateful for the extra time to tag-along with Kat in some of her wedding preparation. We are going to have sooo much fun at this wedding! I can hardly wait to see all the family! Mom and Dad have kept me entertained seeking/sharing house decorating advice, (oh! another credit for HGTV) and I have found I really enjoy making phone calls during the day...as in during regular business hours and not on a Saturday! I better not get too comfortable, because I could get used to this pretty quick!

For my future plans, I have this week again of chemo-free bliss. I'm planning on turning the TV off and reading some more good books from my pile! Thanks to some friends and my relished trips to Barnes and Noble, I've had quite a few titles calling my name these last weeks. I'm also very excited to go to the Tulip Festival with my mom and Amy, so next time I might have a few good pictures to share. Seeing my mom and I race on the wheelchairs will be classic, I think!

Then on the 21st I start my daily pills again and have additional chemo for 5 days at the clinic. I haven't had this type of chemo before, so we'll see how it goes. I can guarantee I'll repeat the practice of ice in the mouth! I brace myself for the worst each time, but we were all very happy to see that my numbers didn't dip too low this last time; and as I wrote before, the side-effects were minimal. So, my prognosis and outlook are very positive!

I wish you all a wonderful week! It is really beginning to feel like spring, isn't it? Our puppies (yea, they're dogs, but they'll always be puppies to me) have loved rolling in the fresh grass, and the cats are going outside more often to enjoy the warm weather. KC sits at his computer working with the open window letting a wonderful breeze through the office, while I keep going out to the flower beds to take pictures of the flowers coming up. It's a beautiful time of year; enjoy!

Love,
~Sarah

New Hair Growth!

2008-04-02T14:10:00.001-07:00

Hey! Just a quick update. KC and I were really excited to see some new hair growth in my crusade to have some hair left for Katie's wedding. Thought you'd like to see the evidence for my case...

People have told me it might grow back in a different color; I think this will go great with Kat's colors, don't you? We found it even has an amazing side-effect from the chemo I've taken...

I could be my own party! Who needs clowns? Oh, and don't you love those Achmed eyes?! It's the meds...they tend to do that to you.

Hope you enjoyed a chuckle!

What does April Snow bring?

2008-04-01T01:14:00.000-07:00

Wow! For those of you who don't know...we have 4 inches of snow in our backyard again! Isn't spring great? I love Utah for the diverse seasons, but I was really getting excited about the warm weather!

KC's parents came out from California to visit us this last week, and luckily they got out just before the snow hit...Boy, was Mom relieved! We feel very blessed that they were able to spend time with us; just hang'n out at the house. They (along with my folks) are just happy to have the event of the day be "watch a movie", or "go to the doctor", or my favorite..."what have you not eaten yet?". We had a great time, and even got to have dinner with both sets of parents! How great is that?!

My first round of chemo went well. I quickly got to know the nurses, finished 2 books (so far), and have my favorite lazyboy staked out for my treatments. As promised, I kept my mouth FULL of ice all week, and it has really paid off! No mouth sores! As I expected, I started feeling the fatigue and soreness on the weekend, but I don't know if my 2-day lag on side-effects are an accuracy thing or a self-manifestation. Either way, those are side-effects I can handle and won't complain much.

I've been amazed that today (Monday) the soreness is starting to diminish, and my strength is returning. If this is an indication on how quickly I'll be able to recover after treatments, I am VERY excited. I'm still bracing myself for the blood count-dip, but thanking God for the relief I feel in my recovery. For the next 3 weeks, I'll be visiting everyother day for bloodwork. So far, so good.

You know, as I go into the cancer clinic, I see many people with different challenges in their health, and realize how minimal my inconvenience has been. While I'm counting my blessings, I am touched by the care and humanity that nurses, doctors, patients, and family members show each other. There's a lot of love being shared in those rooms; it's amazing to witness it.

Another joy was on Sunday we were able to meet up at the Hansens' house for a family dinner. It started out as "Second-Easter", and then morphed into Mom's and Cory's birthday celebrations as well. What fun! I think it's quickly becoming a tradition that the girls spend the time taking pictures and posing for them, while the guys sit around and laugh at us taking the pictures. This, of course, is when they are not climbing apparatuses for the nieces!

Other than that, my life has become pretty boring as far as reporting news; but no news is good news, right? Don't take me wrong; I love every minute of it, and KC can tell you I've watched more H&G TV than a normal person should view. So, I'll bid you "Adieu" before I bore the heck out of ya! (and if I spelled that wrong, blame it on the meds!) 'Till next time...

Lots of love,

~Sarah

Good News!

2008-03-24T23:18:00.000-07:00

Happy Easter! I hope you all had a wonderful weekend with loved ones, shared the joys of all the blessings and miracles Christ brings us, gave thanks for the Ressurection, and felt joy for the second chances we get through The Atonement. What complete love our Savior has for and shows us!

Last friday, we got the wonderful news that I AM IN REMISSION! What sweet words to hear! This means that the chemo was working correctly, and my body was cooperating. YEA!

Now I am entering the "consolidation" phase. I will do three more one-week rounds of chemo, but as an out-patient in the cancer clinic. These are lower doses, and I get 3 weeks inbetween each round to heal and gain my strength. During the 3 weeks of "rest", I will still be going into the clinic to give blood samples, and meeting with my doctors so they can monitor my immune system and other blood related concerns. They are also able to give medicines when my numbers start falling to hopefully boost my own marrow production so I won't have to have as many transfusions. Too cool.

So things are definitely on the recovery track, and I hope that I only have 3 more months of these treatments...then the next stage is "full remission"...where I hope to stay for a very long time! I start the first chemo round (well...first since I've been home...) this week, 3/24. My doctor suggested I keep ice in my mouth for the week I'm in treatment to reduce the mouth sores that were so...annoying...last time. I had a good friend suggest that idea while I was in the hospital; I'm determined to follow the advice this time! (Sorry I wasn't so obedient the first time...) I might even be going overboard, as I try to think of a way to suck on ice while sleeping! ;-)

I appreciate all your thoughts and prayers, and am grateful for your continued actions on mine and KC's behalf. I know God answers prayers and strengthens our faith through our trials. I have witnessed this over and over throughout my life, but especially in these last months. He never gives us anything we can't handle, and many angels found in friends and family have made this experience something we can definitely handle. Thank you for being a part of my growth and for enriching my life.
~Sarah

PS- Oh, I also hope all the eggs were found before the skunks had a chance to hunt them, and the chocolate was soothing to the digestion! Nothing better than a diet of hard-boiled eggs with seasonings of jellybeans and various shapes of chocolate! Just don't make a salad with the fake green plastic "grass"...Trust me on this. Love you all!

Home again, home again, jiggity jig!

2008-03-13T10:04:00.000-07:00

Helllllo! Sarah here, writing to you in my house, in my study, at my computer, with no cat on my lap (I pushed him off...way too demanding for attention while I'm trying to write!)

I came home Saturday afternoon, and enjoyed sitting in a comfortable chair to watch some of the many recorded TV shows I had missed while in the hospital....got to have my Survivor! I'm sure many of you know that joy you have after being away for a long time, of just sitting in your house and looking around with a goofy smile on your face. It was heaven.

Then it was time to go to bed and I realized.....my house has stairs! Drawing on my backpacking memories of tenacity, I climbed my Mt. Whitney one stair at a time, with KC nudging me from behind. After a "quick" shower to wash all the hospital smell off me, that wonderful cloud of a bed never felt so needed. :-)

Each day I feel stronger and can go longer between rests. I continue to tackle the stairs a few times a day, and it felt soooo amazing to wear jeans and a shirt the other day! "Normal" clothes! I'm also loving the fashion of hats...With a long shirt, pants, and a hat, I can pretty much cover up any evidence of chemo. Pretty cool, huh?

One of the things I am most grateful for, is that I get to plan my own days again. I can wake up and make my list (that KC always laughs at) and do the things that I want/need to do on a schedule. (Sigh of comfort) Granted, I don't always get through much of the list, but that's okay. One day at a time. I'm learning to put "sit in chair to rest" and "nap time" on my list more often....that way I get more things checked off!

Friends from the neighborhood have been so supportive in our transition. They think of ways to help before KC and I even have frame of mind to think about them. My friend, Laura, had already coordinated dinners to be coming for us, which relieved KC's responsibilities immensely! He's a great cook, but when he has so many other things on his mind that he is managing....it really has been a blessing for us. "My girls" sent a message of encouragement which touched me deeply, and others have called or briefly stopped by to give a smile and a hug. Great thanks to Donna, who made me a hat to wear to church...I love it! Many thanks also to Brad and his family, who made me some hats which have added greatly to my new sense of style.

Monday I was blessed to see my Hanson nieces, which I've missed so much during this time! Jessie brought her 3 girls over, and we went outside to feel the sunshine! I love the sunshine! We walked around and looked at all the flowers (bulbs) coming up through the ground, talked to the dogs, and played a small version of soccer. I was amazed how they energized me! KC kept quietly asking, "You okay?" I was excited to just smile, and respond, "Yep." It was a wonderful visit.

On Tuesday, KC and I braved my "first" outting. We went up to my parents' house for dinner and a sleepover. It was immensely enjoyable to sit and tell stories and laugh it up family-style. My two other sisters, Amy and Kat (with fiance Cory), also came to share in the fun at dinner. It was very enjoyable! While there, we even got to talk on Skype to KC's parents and on the phone to our Fleming nephews. They kept asking, "When do we get to see you?" KC and I kept thinking, "Oh, if only they knew how much we wanted to see them!" My Uncle Rick called also, and it was great fun talking with him. We are so blessed to have an amazing, loving, and close family.

So, for the next few days I'll be sitting a lot, tackling stairs and other activities that strengthen my muscles again, taking alllllll my medications, reading, writing, and realizing how clumsy I am at wii. KC keeps stifling his laughter as he encourages me......but we'll see. Brennan was right, it sure is helping my muscles and hand-eye coordination improve! (I'm sure a toddler could do better than me at some of these games!) I'm so very grateful for this fun way to improve!

As for the update on my cancer, I go into day-surgery on Wednesday (19th) for my next bone biopsy, and then on Friday (21st) I meet with my oncologist to discuss the next steps in my treatment. They'll also be doing blood-work, etc. In the past, he has indicated that the next 3-4 months are dedicated to treatments and sending me into remission (hopefully permanent), but until then, I don't really know much except to eat well and get strong. I'm trying to get an appetite back still, but small nibbles here and there seem to help. So, just know I'm taking it one day at a time, because I've learned a lot can happen in one day!

Enjoy each moment of this beautiful spring weather, and thank you again for all the jokes, laughter, smiles, and inspiration. May God bless you for all the love and support you share.

Lots of love to ya!

~Sarah

Grateful It's Leap Year!

2008-03-07T21:53:00.000-08:00

Well, it's a good thing it's leap year, because my improvement has been making LEAPS and bounds. Get it? I know, pretty corny. But, when you're in the same room most the day, some things seem a bit funny that aren't really so. ;-)

I have tons of good news to report. Let me start with yesterday (Thursday). My counts were up to a mask-free level, so KC and I were able to take walks around the floor without me having to breathe in my wonderful breath each pant. Boy, the walks were so much more pleasant! My apologies to the visitors who have gotten close enough to me to know what I'm talking about. To those who did not experience this joy....believe me. You are blessed. Needless to say, it was wonderful to see the familiar sights without my glasses fogging up.

Now for today's news (Friday). I am now a free woman! I have no more tubes attached to my arm; or as my oncologist says, "The umbilical cord has been severed." I find it funny how quickly we get into habits, because for some reason I still look for all my "leashes" each time I get out of bed, and think how I'm going to maneuver around the side table between me and my destination. Just shows ya... you better be careful which habits you pick-up, huh.

Also, I was informed that I GET TO GO HOME TOMORROW!!!!!!! Wow! How cool is that? So, I spent today doing my checklists of lasts....this is my last shower here, this is the last time I get clean sheets here, this is the last time you will poke my finger for a blood sugar test, this is the last time I DON'T sleep on MY bed! It was great. The nurses and PCT's were wonderful to celebrate with me all day. Many came in to wish me well and warned me they only wanted to see me again at the grocery store, or as a visitor...it was a little bitter sweet. They have cared for me so well, both physically and mentally. They definitely live up to their name as the "7th Heaven Angels" (we are on the 7th floor); so if you're planning to be in the hospital (do people really do that?), I highly recommend this staff. The food ain't bad, either.

KC and I also got to have a lunch date down in the cafeteria thanks to the staff giving us a coupon for a free meal. I have to say, it was quite overwhelming to be in a room with more than 5 people total, but it was great just sitting and watching people interact. I was very excited to have a salad, because I haven't been able to eat fresh produce for the last month due to bacteria precautions. It was so fresh and yummy! I admit, I'm sure I looked a bit funny chewing, as I still have mouth sores, but it was deliciouso! KC enjoyed a moment of my first sip of Sprite in the last month, as well. Apparently, I was quite comical. I now know what my nephews and nieces mean when they call it the "stingy drink". Yep, definitely bubbly and "stingy"!

I also got to talk to many of my dearest friends today, which made my heart sing. I think my dad said it best, when he commented that relationships are what this life is all about. He's pretty smart.

I thank you for all of your relationships with me, for they are all cherished. My heart has been filled with so much love; I am very blessed and thank you and God for that. I guess I get to add another last to my list today, for this is the last blog from the hospital! I will write next from my chair at my computer in my study in my house with my cat on my lap. Isn't life great?

Have a great week, and enjoy whatever comes your way. Love you all.

~Sarah

Way to go, Vikings!

2008-03-04T02:11:00.000-08:00

YEA! I heard you got the red-shirt award the other week! How did you do it? I mean, we've been trying for how long? ;-)

Anyways, just thought I'd congratulate you for a team effort well done! Please know I'm thinking of you, and am proud of all your accomplishments. Thanks for the good book recommendations; I'll be looking them up soon. Enjoy each day, and be good to each other.

~Mrs. Scott

p.s. I've been doing some math with the nurses. See? You do use math in life! I told you it was fun! :-)

Happy March!

2008-03-04T01:12:00.000-08:00

Sorry it's been so long in writing. I feel as if I am coming out of the Dark Ages and into the Age of Enlightenment. It's amazing how you can kind of "check-out" of things for a while...and then to feel the awakenings of the mind, stirrings for cultural activities, and strength of the spirit return is sooo refreshing!

Different than the historical Dark Ages, however, my days of darkness have a tapestry woven of spiritual blessings and growth. I have never before realized the degree of learning we can accomplish through others' trials, but I have been honored to learn this through many of you. Here are just a few examples, and I hope that they are okay to share...

My nephews and nieces had a strengthening experience in fasting as they wanted to fast for my recovery; they learned how to focus on the purpose of a fast and it became a personal experience for them.

My nieces, who pray for me each day, one morning asked if I would have fun. I was later able to share with this dear 5 year old that her prayer was answered. Her desire mentioned in her prayer enabled me my first good day after the storm; and I did have fun. I laughed a lot that day.

A few people close to me have started taking more interest in their religious life, due to their concern for me.

Many dear friends have put my name on the prayer roles, which have given me blessings of relief, a visit from a specialist who could give me aide, or a night with my favorite nurses/PCTs who watched out for me.

Priesthood blessings have strengthened and comforted us all in our times of need.

I also have received spiritual growth through an other's time of trial. I remember as a youth, watching our dear friend, Brother Sion, struggle with cancer. He didn't speak any English and was in a lot of physical pain, yet he attended church meetings each and every week. I would watch for him each Sunday, and learned from him that if he thought it was important to be there at church, then no matter what my complaint, it was important for me to be there too. I will forever be grateful for his example.

Other weavings of my tapestry have been in the forms of people blessing us with their abilities.

A friend from the neighborhood, Stacy Lamb, came and cut my hair one afternoon. It had become quite hard to take care of, and the long strands of hair were just...gross. So, now I have a great new cut that is easy to take care of, and is easy with the lifestyle I now lead.

I also received a beautiful quilt of love (complete with pillow cases) which my family made to help me remember my life outside of the hospital...something that is occasionally vague in my mind anymore!

I have some great artwork and hilarious pictures sent by my nephews and nieces. (and their parents, too!)

I have been touched by notes, comments, cards, gifts, and letters left and delivered by dear friends and family, letting me know they were thinking of me and sending me strength.

The Relief Society of my ward has delivered tapes of excellent Sunday lessons which has helped me feel connected with the ward while here in the hospital. I've loved hearing the comments of friends along with the lessons.

Though my body seems to be decaying around me, my dear husband still looks into my eyes and tells me I'm beautiful and that he loves me.

There have been many other blessings, and I don't mention them to boast. I merely hope to acknowledge the amazing people who bless my life through their selfless actions, and hope to spread their love and inspiration. I am truly humbled by the service given on my behalf, and am grateful to be a witness to it.

So, if you're wondering how I'm doing, I'm on the upswing. I have now gone several days without a fever, and I am showing little bits of improvement (and less hair) each day. My oncologist joked with me the other day, "You know, you can start growing that bone marrow any day now!" I promised I'd work on that. True to my word, my "blood counts" are starting to improve!

Yesterday a dermatologist was called in to look at yet another rash of mine. His opener was, "There are two types of rashes for a cancer patient. Ones that will kill you, and ones that won't kill you." Great line, huh? I'm happy to tell you, I have the type that WON'T kill me. Hallelujah and for Jeff Dunham fans "Silence, it won't kill me!" :-) So, all is well and on the mend.

Have a great week, and hopefully I'll be able to get to the computer a bit more than before. Again, thank you for all your thoughts and prayers. They are felt and truly appreciated. God bless you.

~Sarah

A Salute...

2008-02-25T17:15:00.000-08:00

to all the sore backs, hips, and necks that bear the worries of the heart and mind
to all the resilient survivors of trials instant and chronic that continue to strengthen others in their times of need
to all the poets, known and familiar, that remind us the spirit is stronger than the flesh
to comfortable PJs
to researchers, science, and the ones who finance such curiosities
to innocent compassion scribbled on a page by young and old hands
to clergymen who supply pews, candles, and comfort for the searching souls
to friendship that lasts years of little contact
to spunky uncles with wonderfully bald heads
to cheerful caretakers willing to "measure my output"
to parents, family, and friends who love me in spite of my faults, ease my burdens so willingly, and bless my life beyond measure
to my God who makes everything possible and patiently shows me the miracles of His love

I Salute!

~taken from Sarah's notes written on Feb. 18th at 4am

Feb 22nd Update

2008-02-22T06:52:00.000-08:00

It's been a tough few of days so far this week. After the last dose of chemo on Sunday there were some noticable reactions. The most difficult one so far has been the depletion of healthy cells in the mouth, throat, and digestive system. Sarah has struggled to eat and talk this week which allows for extra time to sleep and heal.

We have been blessed with letters and cards expressing support and love through this process and know that all the prayers on our behalf are being heard. We appreciate the sacrifice from K.C.'s mom who was able to come through to Utah for a couple of weeks and just left on Tuesday. Her presence and that of Sarah's family has provided wonderful support as we transition into our new routines.

Due to Sarah's weakened immune system we ask that visits be limited to family and necessities only for the remainder of this week. Cards and messages of support are always welcome!!

Valentines' Day--Oh, the Love!

2008-02-15T16:30:00.000-08:00

I've now been a patron of "7th Heaven", as our floor is known around the hosptial, for a week. What an amazing staff! The nurses, PCTs (Patient Care Techs), doctors, and staff are very cheerful and dedicated as they go about performing their duties. I joke that I'm just back on the cruise ship, hanging out in my cabin....but I think their care even goes beyond the great "service of the seas". (Although, come to think of it, I could use a sideshow every once and a while. I miss the glittery costumes and showtune karaoke...don't worry, I'm not looking for any volunteers!) Lightheartedness aside, I am in good hands here. I'm very lucky.

It was also great seeing all the scrubs with "lovely" themes here at the hospital, and I even joined in with some festive PJs of my own for the day. Some volunteers had come around a few days previous to decorate our doors with hearts, and then at night some of the PCTs came in with a sweet note and hershey-kiss-rose. KC and I enjoyed a quite night just spending time together after my Chemo treatment...how often do we get to do that anymore? Life, I have decided, is way too busy and distracting.

I have been truly strengthened and overwhelmed at the love shared with me this last week. I can't thank people enough. It's amazing how someone will show up with some sweet words of encouragement, or will write things to me which send me into laughter. My students and friends at school have been so tenacious in letting me know I am missed, which makes my heart swell! I am so proud of them, and sensitive to their compassion.

My friends in the neighboorhood and ward have eased my thoughts by taking care of things "on the homefront", while my friends and family far away have sustained me with their solid faith and prayers for my health.
Thank you to all. These words and my ability to express my feelings are so inadequate, but I hope you feel the message and gratitude beyond the text.

As far as my progress, everything seems to be going quite well. I only have one more dose of chemo for this visit, although I will be here in the "cabin" for another few weeks getting an immune system back. The side-effects of the medicine have been very minimal, and I thank my blessings hourly. Who knows, I may even get to keep my hair! (Hopefully that doesn't dissappoint many of you!)

Enjoy ALL your time with your loved ones, and thank you for sharing your love with me.

~Sarah

Hey, Students! Look here to talk with Mrs. Scott!

2008-02-12T23:26:00.000-08:00

Hello, Vikings!

I miss spending the days with you, but know you are in good hands with all the teachers and staff there at school. I thought I'd create a special post here so that if you want to write or ask questions, you can do so. I'll check it as often as possible, and hopefully you'll feel like I'm still there with ya...except I won't be taking those recess minutes to share my words of wisdom! (Lucky you!)

Some of you may have heard that I have Leukemia. Yep, it's true. But what I have found out this last week, is that people have very different pictures in their heads about what this looks like, and acts like. The truth is, there are many different types of Leukemia. Mine is called APL, to say the short version. So, what is mine like? Well, I still look the same, except I am wearing my PJs all day (lucky me!). Really nice doctors and nurses come talk to me during the day, they bring me my food in bed, they give me medicine to help me feel better, and I read books, go for small walks around the hospital, and write to you guys! The medicine I take is very special, because it only works on my type of Leukemia. Scientists and doctors have done research with genes and found how to do "target practice" on the bad cells in my body, and eventually reverse the mutation. Pretty cool, huh? So, I'll be gone for a while getting better, but the good news is...I'm getting better.

So, first let's talk about Genes...Heredity...(are you singing yet?) Well, this week I've learned that my genes had a mutation. They changed unexpectedly; I didn't inherit the problem, or get it from an environmental change...it just happened. The genes in my bone marrow (the middle part of the bone) changed a bit so that the blood cells it makes only grow a little bit. Because they did not grow into adult blood cells, they didn't leave the bone marrow to protect my body from sicknesses and made it hard to produce other important types of cells. What this meant for me, was that I would get pale (look a little more white than my white self), I was more tired than usual, and if I got bumped just a little, I would get a nice, nasty bruise.

Other blood cells were also affected, like my white blood cells. They are kind of "retarded" due to the mutations, so they are not able to fight off germs as well. This is one of the main reasons why I need to stay in the hospital. If I get around any germs right now, I will get really sick. Normally, the white blood cells fight off the germs that make us sick, so even if you start to get sick, you'll get better eventually. Not me, for a while. Those retarded white cells don't know what to do with germs, and there aren't that many in my body, anyways, compared to "normal" people. (Yea, we know who the "normal" ones are!) So, over the next few months, the medicine I am taking is getting rid of the mutated and retarded cells, and is helping to fix the mutation in the DNA back to what it was before, so it will produce healthy blood cells again. Pretty amazing.....are you impressed? I sure am!

Hopefully this helps you understand a bit more about why I'm not there with you at school. Recently Mrs. Underwood and Mrs. Steele delivered a package to me....TONS of flowers made of colored tissue! They are so beautiful! They are hanging as garland on the wall, and bunches are in vases all over my room. It looks soooo much better in here. The nurses come in and just stare with smiles on their faces. It's great fun to look at, and makes me happy thinking of you. Thank you for all the work you put into that and also the great letters/valentines. Really. Thank you.

Leave me a comment if you'd like, and I'll try to answer back. If you have stuff you'd like send to me just give it to Mrs. Underwood and she'll get it to me somehow. Be excellent to each other, because I know you are just that. And remember that learning is FUN, no matter what the subject is.

Thinking of you often,
~Mrs. Scott

Treatment has begun

2008-02-12T16:47:00.000-08:00

The treatment for APL (for those that haven't linked to the site below) is a combination of chemotherapy and a vitamin A type drug that will go after the source of the problem. Sarah received the first dose of chemo on Sunday afternoon. This first round consists of 4 doses every other day, which means we are waiting for the next dose this very minute. The vitamin A drug (ATRA) began 24 hours prior to the first dose of chemo and will continue throughout the entire treatment regimine (we anticipate it will be at least three months).

We expect her to receive blood and platelet transfusions as the days progress and her cell counts dip pretty low. If you are able and willing to donate blood or platelets please do so. We are extremely grateful for those that donated these necessities that have been instrumental to helping Sarah.

Sarah has yet to feel any side effects and her sisters have big plans for when her hair falls out (if it does). I don't think it's right to say they are excited, but it's nice to know they are ready to step when needed. Her brother, Ben, has already provided hairstyling tips available during the transitional period (he's in the military for those that don't know).

The Beginning

2008-02-11T00:45:00.000-08:00

It started last week when Sarah felt poorly, but not so bad that she was unable to work or function. She had been pale and weak on occasion and had continued normal activities including helping her parents move boxes. We did notice that she bruised rather easily and was often just not her normal energetic self.

On Tuesday morning she was unable to catch her breath, her heart was pumping extra hard, and she had no energy at all so I determined we would visit the Emergency Room that morning. They began by taking blood and started running tests. At first we thought it was either anemia or some reaction to some new meds she was on, but soon they informed us that her cell count (red, white, and platelet) was abnormally low and would begin transfusions immediately. She began to feel better after they gave her 4 units of blood and now they could start looking for why the count was so off.

They first looked at possible bleeding, but found nothing out of the ordinary that would explain her status. So they felt it was either lack of creating new blood cells or an autoimmune problem where new cells were being attacked as foreign matter. Because her condition was unknown she was admitted to the hospital for overnight observation on Tuesday. Blood work was run every 4 hours, which became a clotting/bruising problem due to low platelet counts.

To learn if new cells were being made they needed a bone marrow biopsy which began on Wednesday morning when the first two attempts for marrow came up dry. The third attempt was to extract core material, but this was excruciatingly painful and halted immediately. The biopsy was rescheduled for Thursday morning using same-day surgery. The procedure on Thursday resulted in one dry marrow tap so again a core sample was extracted. The core sample was insufficient so they did two to ensure they had enough material for testing.

Sarah was sent home to rest and was doing so when a call from the Oncologist came at 2pm to come to the office immediately. Sarah's parents were in town at the time and they came with us to the meeting. It didn't take long and the doctor broke the news that she definitely had Leukemia. Which type was still not pinpointed but she was to be admitted to the hospital again as soon as possible.

After further testing was done on Friday and Saturday, the lab was able to identify that she had Acute Promyelocytic Leukemia. The Oncologist indicated that of all the various types of leukemia this one is dangerously aggressive but also treatable with a high success rate of remission and cure.